“They gave me my life back”

Heather Bos, before and after being at UHN.

Heather Bos made a donation in honour of her health care providers after suffering years of severe seizures. (Photo: Courtesy Heather Bos)

In 2013, 27-year-old Heather was diagnosed with epilepsy after suffering from seizures since she was a teen. Over the next four years her health steadily declined – due to daily seizures she couldn’t finish university and was unable to hold a job.

Medications weren’t working, and her doctor was out of treatment options. Heather was losing hope that she’d be able to live a normal life again.

Thankfully, in 2017 she was referred to University Health Network (UHN) to get the help she needed. She met Dr. Danielle Andrade, a neurologist in the Epilepsy Program within UHN’s Krembil Brain Institute, and knew she was in good hands.

Only three days after her initial appointment with Dr. Andrade, Heather was admitted to UHN’s in-patient Epilepsy Monitoring Unit (EMU). She had multiple stays throughout 2017, undergoing invasive and isolating testing and treatment to find the cause of her seizures. Her care team never gave up, they were determined to help Heather.

The testing required Heather to be hooked up to machines and confined to her hospital room for weeks at a time. Friends and family came to visit, but Heather received the most interaction from the researchers who visited her each day, as she had agreed to participate in an ongoing study for epilepsy research.

“The researchers at UHN were so kind and helpful, they gave me hope every day,” says Heather. “It was hard, but they motivated me to keep going.”

Eventually the team realized that medications would not alleviate the seizures and non-invasive treatment was not an option for Heather. Her extended stays in the EMU allowed Dr. Taufik Valiante, neurosurgeon and Surgical Director for UHN’s Epilepsy Program, to evaluate whether she was a candidate for the most invasive treatment yet – brain surgery.

Heather Bos with Dr. Taufik Valiante
“It was scary but I didn’t really see another option,” says Heather Bos, pictured with Dr. Taufik Valiante, neurosurgeon and Surgical Director for UHN’s Epilepsy Program. Dr. Valiante performed successful surgery on Heather in 2018. (Photo: Courtesy Heather Bos)

After months of testing, Dr. Valiante approved Heather for surgery. The plan was to remove the portion of her brain that was causing the seizures.

Heather was terrified.

“It was scary but I didn’t really see another option,” says Heather. “My choices were to continue having seizures, or have brain surgery.”

The surgery took place in 2018, and thanks to the skill and expertise of her care team, it was a success. While she still experiences minor seizures, she has a treatment plan that works for her and she’s no longer watching life pass her by. She’s even going back to finish university almost ten years later, this time to study criminology with the goal of becoming a police officer.

To thank the team that gave her life back, Heather made a donation through UHN Foundation’s Honour Your Hero program. The program provides the opportunity for patients and their families to express gratitude for the care they received with a personal message of thanks while also making a gift in support of UHN.

“The dedication and hard work they did for me was absolutely amazing, and they are heroes to many people, not just me,” says Heather. “Recognizing these heroes shows that getting better is possible and saving lives is definitely what heroes do!”

Heather made multiple gifts in honour of her care team, including Drs. Andrade and Valiante, a nurse from the EMU and one of the researchers.

“They gave me my life back. Every little bit helps, and if they can use the donations to find new treatments or help other people get better, that would be amazing.”

Did you know you can recognize a UHN staff member through our Honour Your Hero program? Express gratitude for the care you or a loved one received and share a personal message of thanks with the people who supported you throughout your care journey. Your gift will supported research, education and the enhancement of patient care right here at UHN.

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